Things are nuts.
I'd like all my posts to be thought out and worded perfect, kind of like the essay part of the SAT's - impromptu organization. No time for that tonight. This is going to be a mess.
First week home was crazy.
We had 3 clinic appointments, husband had surgery, a friend came into town, we celebrated John's birthday, and we had friends over from the Springs.
That was just this week.
The craziest part was Friday. Friday we went to clinic at 7:30 in the morning. By 11:30 Aliyah had had two different sets of labs drawn, an echo, EKG, 3 x-rays and a foley catheder put in and removed. Sunday we were back in because she was (and is) puking frequently. She is eating better but the first half of the week she was puking every time she ate and the last two days it's just been when we give her two of her meds. Cellcept and bactrim cause an upset stomach, so she vomits every time we give them to her which happens to be twice a day. The reason we had an emergency clinic visit Sunday morning is because puking is also a sign of rejection, and on Friday they said her white cell count and platelets had doubled since Tuesday. She isn't rejection her heart, just the meds!
Getting back into a cleaning routine is tough. Really tough. This place is a disaster and I really, honestly have no time to do anything about it. Some day I will. Some day we will have a routine. My husband won't always have surgery and a birthday the same week. She'll be off the cellcept and bactrim in another 2 or 3 weeks. All the phone calls and bills will get made and paid on time. Eventually. I can't be super woman - I am the only one that expects myself to be the 50's housewife, house dust-free, homemade dinner in the oven, wearing high heels and a smile on my face. Instead I'm the always showered, sometimes dressed wife with a baby on one side and drawing meds on the other. The bed's made - that counts for something, right?
And I stopped pumping. Probably not the best week to deal with such a drastic hormonal change, but I'm doing okay so far. I wish I could've nursed her forever. I'll never forget what it felt like to nurse her - and I'm not talking about the painful part. I'm talking about the part where she looks into your eyes and you know that you're doing the very best thing for her, and that she loves you for it. Instead she's eating 3232A. No, I'm not feeding her a tax form.
What do you feed a baby when they can't have fat or milk? 3232A, of course. It's $87 a can makes it the perfect option for high income families and for children that would rather their food taste like poop than nutrition.
It really smells the same coming out as it does going in.
Nasty.
So I'm frustrated my house is a mess and that Aliyah is puking every morning and every night. I can guarantee you that between 8:30 and 9:30 every morning and night Mountain Standard time, she's puking and I'm cursing.
Oh and the foley catheder was to get a urine sample. We thought she had a UTI because of her white cell count. She doesn't. She had blood in her urine, so we kicked the lovenox (blood thinner) and that has gone away too.
We have to leave here at 6:40 to take Tim to the airport and then get John to Carson for a post-op appointment. Ugh.
I can't wait for simple. Ordinary. Boring. Lazy. Uneventful.
Anyone want to be my hired help?


3 comments:
Wish I could be there to help. I posted a poem on my blog that helps me when things seem crazy. Do the next thing. Maybe it will help a little. http://thehonoredhome.blogspot.com/2010/02/do-next-thing.html
By the way. You ARE superwoman!
If I could blink and arrive at your front door, I would love nothing more than to be your hired help... this time shall pass love, the days of squeaky clean and boring are just around the corner. I am praying for all the little details my OCD(more correctly 'COD') mind can come up with. I LOVE YOU!
you are doing a wonderful job! keep up the good work :)
Post a Comment